Sarah Loki became an agitator after her daughter Tilly received meningococcal septicemia, a lethal form of meningitis for which there was no vaccination at the time, and she had to undergo surgery to amputate both hands.
Besides doing everything she can with her family to make Tilly's life as normal as possible, and making sure she has the same opportunities as any other child, Sarah is also working to raise awareness about meningitis. Tilly recently received a robotic arm to try and was invited, along with Sarah, to go to Comic-Con in San Diego to share her experiences.
Tilly contracted meningococcal septicaemia in strain B when she was 15 months old. Up to this point, Tilly was a very healthy girl, and within hours we were told that, most likely, she'll die.
Meningitis was diagnosed with strain b septicemia-apparently a rare disease for which there was no vaccination at the time. Tilly was supposed to be transferred directly to the hospital to Newcastle, where they have a Pediatric intensive care unit. They said come and say goodbye to Tilly because they had to shut her body down and let him rest – it was just a machine that kept her alive.
Tilly blood transfusions in the ambulance on the way to the hospital. We weren't allowed to be with her or follow the ambulance. We were told to go home and get ready, because if she had survived this trial, we'd have been in the hospital for a long time.
Tilly Lockey, double amputee, tests a bionic hand
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Tilly Lockey, double amputee, tests a bionic hand
Если нечего сказать по теме лучше промолчи @
.....бывают дни хорошие...
.....бывают дни хорошие...
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Re: Tilly Lockey, double amputee, tests a bionic hand
Tilly had nine blood transfusions to help her survive. (Thank you so much to each and every person that gives blood – you might not realise it, but your donation can literally be the gift of life.) At this point we found out she needed another blood transfusion as she had contracted a secondary infection. We had thought we were through the worst in recovery, so to be hit by that was very scary.
Ever the fighter, Tilly did it though – she pulled through it and the next thing we had to concentrate on was getting her to eat something and hear her voice again. Since she had contracted meningitis she had been completely mute and no facial expression. We were told it was probably because she had been in so much shock.
While we were at home and and waiting for the appointment to go back in and get her hands amputated we threw ourselves into doing a fundraiser for Meningitis Research. We held an auction at our local pub and lots of local businesses got involved and we managed to raise £10k for the charity and a lot of meningitis awareness.
Tilly was helping with research on what amputees need and was fitted with the socket that had been created from the 3D scan we emailed and sensors were attached to her arm to work out the sensitivity of Tilly’s muscle movements.
Ever the fighter, Tilly did it though – she pulled through it and the next thing we had to concentrate on was getting her to eat something and hear her voice again. Since she had contracted meningitis she had been completely mute and no facial expression. We were told it was probably because she had been in so much shock.
While we were at home and and waiting for the appointment to go back in and get her hands amputated we threw ourselves into doing a fundraiser for Meningitis Research. We held an auction at our local pub and lots of local businesses got involved and we managed to raise £10k for the charity and a lot of meningitis awareness.
Tilly was helping with research on what amputees need and was fitted with the socket that had been created from the 3D scan we emailed and sensors were attached to her arm to work out the sensitivity of Tilly’s muscle movements.
Если нечего сказать по теме лучше промолчи @
.....бывают дни хорошие...
.....бывают дни хорошие...
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- Администратор
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Re: Tilly Lockey, double amputee, tests a bionic hand
Tilly is happy working alongside Open Bionics and she is loving everything about the experience. I think this opportunity came at the right time for Tilly as she had just started to lose a little bit of her confidence and this has brought it back.
She already has done a lot of modelling but she would love to take it to the next level and model bionic hands as a fashion accessory and not just a necessary piece of equipment. Tilly would love to be there to show other children who have a disability that there is a better future for them and that they can do it too. Maybe one day Tilly can draw around her bionic hand to support another child fundraising for bionic limbs.
She already has done a lot of modelling but she would love to take it to the next level and model bionic hands as a fashion accessory and not just a necessary piece of equipment. Tilly would love to be there to show other children who have a disability that there is a better future for them and that they can do it too. Maybe one day Tilly can draw around her bionic hand to support another child fundraising for bionic limbs.
Если нечего сказать по теме лучше промолчи @
.....бывают дни хорошие...
.....бывают дни хорошие...
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